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Category: Brain science

We Are Under Attack!

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Last week, I attended the International Conference on ADHD. It was great to see coaching friends in person, to meet new people, and to learn so many new things. All three keynote speakers were truly inspiring, imparting information and motivation.

One common thread for all three speeches related to the current situation neurodiverse people are facing, due to a variety of policy and personnel changes in the Federal government. In case you are not aware of these challenges, here is a brief summary (if you know the issues, you can head down to the Call To Action):

Department of Education/Office of Special Education: The Trump administration has expressed its intention to close the Department of Education. Since this can only take place through an act of Congress, the Department’s staff is being critically reduced, and plans have been announced to move various departments to other agencies. These actions will hamper oversight of compliance with IDEA (Individuals with Disabilities Education Act), which protects the rights of disabled students. It also can impact administration and protection of Section 504, under which many students with ADHD receive vital accommodations.

Additionally, Office of Special Education staff has been significantly decreased. This endangers distribution of funding for special education programs at schools. There have also been discussions of moving OSEP to the Department of Health and Human Services, which smacks of looking at special education students as being impaired, versus different.

Evidence – Based Care/Treatment of ADHD:  There have been many, many studies on ADHD that show that a multi-modal approach to treatment – medication, therapy, educational and work supports – is the best practice when it comes to addressing ADHD. However, the MAHA commission established by Robert F. Kennedy Jr., has cast doubt on these studies and treatments. MAHA’s approach could impact the availability of medication for ADHD and other mental health challenges, as well as cause issues with insurance coverage for treatments. The shortage of ADHD medication in recent years has been incredibly difficult for those that rely on medication to do their work, drive safely, and live life to the fullest. One can only imagine how reducing access to medication altogether would impact the ADHD community.

Call To Action!

Do the issues summarized above make you anxious? Frustrated? Angry? Is the thought of your child being unable to get their medication, or having difficulties at school because of programs being erased, something that you do not want to stand for?

After listening to the keynote speakers at the conference, I am ready to fight.

There are simple ways to make your opinion known to your Federal representatives. While you may think that this is ineffective, I can tell you, as a former constituent liaison for a state representative, letters, emails, and phone calls are logged. So while every word you write may not matter, just the act of writing does. We need to show our representatives that access to evidence based care and a protective environment for our neurodiverse children matters!

The CHADD Advocacy Center (https://chadd.org/adhd-advocacy-action-center/) is set up for extremely easy access to your representatives. They supply a template for emails on a variety of important topics. When you insert your name and address, your email is automatically routed to your representative. It takes literally two minutes.

I know that having one more task on your plate is exactly what you don’t want. So here are a few strategies to help out:

  • Set an alarm/reminder for a somewhat less busy time during your day.
  • Have Siri/Alexa remind you to “stand up for the rights of ADHDers!”
  • Stack sending emails with another existing habit (“before I brush my teeth I will…”)
  • Hop on the CHADD site while doing something else that you enjoy (“I will listen to this podcast only if I am also contacting my senator!”)
  • Gamify it – how many emails can you send in one week? Set up a contest with a friend or family member. (It is okay to send it over and over, again, numbers matter!) 
  • Think about your future self – will FutureYou want you to ignore this issue, and leave them without meds??
  • Ponder your values – who do you want to be in relation to this issue? Do you believe that all people are entitled to the assistance that will help them live a good life?

I urge you to not sit on the sidelines. Use that ADHD sense of justice and fairness, and your creativity and compassion, to propel you towards action. For you, for me, for all of us.

Why Does ADHD Awareness Matter?

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October is ADHD Awareness Month. You may have received an email about it, or seen a post online. And you may have skipped right over it – after all, YOU are aware that you have ADHD, isn’t that enough? 

Nope. It is not. Let’s go through a quick round up for whom ADHD awareness is extremely important, impacting ADHDers, and neurotypicals.

Teachers and School Administrators – As a retired K-6 educator, I can accurately state that while teachers are aware of ADHD, many have not had appropriate training, and therefore do not have a full understanding of what it is and isn’t, or how to address challenges in the classroom.This is important if you are a parent of an ADHDer, as having your child get the message that they are lazy, incompetent, or even stupid can have life long ill effects on their self esteem. Additionally, if you are requesting accommodations or modifications, it is vital that the school team has a clear picture of what will help your child.

Managers in the workplace – ADHDers, with their creativity and ability to think outside the box, can be a real positive force in the workplace. However, they also can have difficulties with organization, and time blindness. This means that any project or responsibility, even simple tasks, can become a struggle to complete on time, or at all. Furthermore, ADHD hyperfocus can be a double edged sword. While being able to dig deep is a plus in any analytical position, getting stuck down a rabbit hole can slow work down without commensurate value. There are simple accommodations that can help with these challenges, such as check-ins with the manager. However, in order to put these supports in place, managers need to recognize that ADHD is real, not just an excuse.

Family members aside from parents – Hopefully, if you are an ADHD parent, having an ADHD kiddo has led you to learn about ADHD, and gain an understanding of the causes of ADHD, as well as how to handle your child’s particular brand (and if not, let’s talk!). However, other family members may not believe that ADHD is real, or may make comments that can cut your child’s ego like a machete. If we believe that family members love our child, and are just misinformed, then sharing more about ADHD can benefit everyone.

Our Government – Currently, the health and science arm of the U.S. government is going through radical changes, and often proffering opinions that are not backed by the majority of scientific research. ADHD has been mentioned in the MAHA literature, with RFK Jr. proposing voluntary attendance at “wellness farms” as a treatment. Perhaps some ADHD awareness, particularly relating to research backed treatment scenarios, would be helpful for the decision makers in Washington.

This is by no means a complete list. My goal is to change your awareness of how sharing accurate information on ADHD can be beneficial to you, your loved ones, and society in general. Knowing about your or your child’s ADHD isn’t enough; we need to spread the word.

So Happy ADHD Awareness Month! Go out there and amplify what YOU know about ADHD, for others!

If You Don’t Know The Basic Science Behind ADHD, You Need to Learn It

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When I do an initial intake with a new client, one of the questions I ask is “What would you like to learn about your ADHD?”  It’s a pretty broad question, and most responses center around wanting to learn how to be more productive, or how to organize their lives.

At that point, I ask, “How much do you know about the brain science behind your ADHD?”

The majority say they don’t know anything, or very little. The word dopamine is bandied about a bit. And most surprisingly, when I ask if they would like to know more, most say, “I don’t really need to.”

Oh, but you do. You really, really do.

I’m not talking about becoming a neuropsychologist, or obtaining the knowledge that your psychiatrist has. But having a basic understanding of what physically makes your brain different, and how that impacts your life, is, in my opinion, essential. 

First, it is vital to understand that there are physical differences between the ADHD brain and the neurotypical brain. It is not being lazy, or dumb, or anything behavioral. Comprehending that concept opens up an entire world for those of you who have been chastising yourselves about not trying harder. Or just not getting over it.

Would you berate yourself because you haven’t tried harder to see better, if you are a glasses wearer? Of course not. And just because this is a brain related disorder does not make it any less physical.

Repeat that to yourself a few times.

Secondly, I’m not sure how one can make a well informed decision about symptom management if they don’t understand what is causing the symptoms to begin with.

Let’s take an example from my running life. Let’s say I have a pain in my knee. In order to decide how to handle that, (Rest? Ice? New running shoes? Surgery?) I need to understand what may have happened that resulted in this pain before I can decide what I need to do next.

With ADHD, having a working comprehension of what is causing symptoms can help us to make solid treatment decisions. Knowing that my brain has lower dopamine might lead me to use medication to offset that. Understanding that the areas of my brain that control my emotional responses are different than those belonging to neurotypicals might convince me to try meditation to help with regulating my responses.

Deciding on one’s symptom management without having a basic understanding of what is causing the symptoms is like wearing a bikini on a sunny day…in February. You just don’t have all the facts to make an informed decision.

Finally, having a basic working knowledge of how your brain is different enables you to set up your life in ways that support you.

Dopamine low? Let’s make things more fun to get us going! Executive functions negatively impacted? Maybe an accountability buddy or group can help keep us on track. Fight or flight activated quickly? Perhaps I need to let my significant other know this can happen.

I don’t mean to imply that the ADHD brain is wrong, or broken, or just not effective. Not at all. But it IS different. And providing yourself with that knowledge is a gift of self awareness, and part of the ADHD toolbox for living your best life.